Today started out nice and early like every other morning lately, up just before 6am, again having had a restless and somewhat sleepless night. Our bodies seem to be getting used to functioning on under 5 hours a night.
Paul and Scott back to school today but Marc still off til next tuesday (after his delicate operation last week). Had to get granny up early this morning to help us out as times don't work too well around school times. Have got the boys organised for the breakfast club though from now on, so granny wont have to get up that early every morning, although she did offer, so did David!!
Adam was in a great mood when we got to the Western this morning and it almost lasted until we got taken, had to wait about 10 minutes this morning and he was starting to get unsettled, we then got taken through and he had his "magic sleep". When he came round this morning he was fantastic. No crying or moaning, not hitting or kicking, it was just Adam, our Adam! Not the horrible devil child who seems to invade his body every now and again. I maybe should have said but his steroid dose has been halved today and what a difference this has had on his behaviour. It's official we all hate the steroids!
Infact, he was so brilliant, that he admitted he was starving and we went to Morrisons for breakfast! We had hoped to pop into the nursery to see all his friends but ran out of time. Too busy munching at Morrisons!! Hopefully pop in on Friday morning though.
He was a little sick tonight just after 6pm but I think that was because he got himself into a flap because I wouldn't let him back down to the garden as he was having a bath. He has been eating since though and not been sick again, so hopefully it wasn't any of his drugs making him sick. Will need to keep an eye on that.
So, all in all, quite a good day for us today. He is in bed now watching a DVD, so hopefully be asleep in next hour , then so will I be I think. Spike and Paul watching footie and other boys in bed too.
Once again, thanks for support and messages, all are really appreciated. Infact we are overwhelmed by the whole situation.
Love to you all.
Lynn, Spike and the clan.
XxxxxX
Subscribe to:
Post Comments (Atom)
8 comments:
I'll never appreciate how you guys are coping with day to day life right now but I truly applaud you. What a week you've had....and it's only Wednesday!!! So glad to hear Adam's treatment is going well, all things considered. You've a long road ahead so grab every precious minute with both hands and treasure it. Hope the love and concern shared by so many who care about you brings you strength, comfort and courage in the days ahead.
Love to all - Diane,Rab,Nathan & Ellie xxx
Hi Lynn, Spike & Clan
Glad to hear today was a good day. Wishing you the same for tomorrow.
Morrisons breakfast...yumyum!!
Love Lesley, Darren & Ewan
xx
Its great to hear that it went well and there wasn`t the stress for you all.
Take care
Carolle Howarth x
I'm glad that the treatment is giving you all some relief. I hope it works as well as it can and you can go on to enjoy some time together as a family doing "nice" things together (rather than all these hospital visits). Take care and if there's anything we can do, anything at all. We're here day or night :-)
Jayne & Stuart
Hugs from across the pond.
So glad to hear it was a better day for you all and great news that "demon child" was kept at bay!! Sending loads of love to you all, always. Remember, you know where we are if we can do anything to support you!
Much love,
Shiona xxx
Wishing you more "better" days.
Love from:
Kevin, Fiona, Dustin and Tara
Pleased to hear you had a better day, i think you're all coping marvellously hope all goes well tomorrow, thinking about you all,
Lots of love
Aunty Anne and Uncle Ron
Post a Comment