Thursday, May 22, 2008

The steroids have stopped!!

Yippee!! We are off the steroids again (for now), and glad to see the back of them. The way they change moods and behaviour is unbelievable. Not that Adam was ever the perfect child but you get my meaning! Ha ha!

Whatever way we look at it, he has become himself again, let's hope the headaches stay away this time, at least for a longer period, otherwise he will need to start them again.

Radiotherapy was good again this morning, he still gets a little upset before hand but I think that is more anticipation of what he thinks is going to happen rather than what actually happens. As he is asleep he is still a little confused as to what exactly goes on when he's sleeping.

Left the Western and then headed home again before going up to the Sick Kids for his first full blood count. He will need to get this done at east once a week to keep an eye on different cell levels. If his red cell count is too low he will need a transfusion and if his white cell count is low then he will need antibiotics to help fight any infections he may come into contact with. I forgot to phone back this afternoon to get his results so will need to wait until tomorrow now, but they must be ok otherwise I am sure they would have phoned us!

After a run around in the garden for a while after school with the boys, he had a wash and had something to eat and is now getting settled for the night. Hoping he sleeps well, had a reasonable night last night although Scott slept in beside his dad while I slept in the room with Adam in Scott's junior bed - not recommended as I was very sore this morning not being able to stretch out properly.

Coming to the end of our first week or Radiotherapy tomorrow, it's gone in so quick.

The days are slipping past us too quickly - how do we slow this roundabout down?

L x


David, Marc, Scott and Adam feeding the ducks and swans at Arthur Seat.

7 comments:

Unknown said...

Glad today has been alot better for you all and he`s had time to spend with his brothers without the steroids "changing him"

I should imagine you want the treatment time to go quickly and the family time to last and last.

Hope you have another good day tomorrow.

Carolle Howarth

Jayne said...

I hadn't thought about "time"

you must want treatment time to pass quickly but family time to last forever. I hope you have a lovely weekend ahead planned and enjoy not having the bind of treatment. I hope all the boys are coping well and you and Spike and coping (I guess that's as much as anyone can ask.

Take care

XXXXX

Shiona said...

Great to hear the steroids have stopped Lynn - thats fab news! Let's hope the next 5 weeks go in as quickly as the first.
Sending you all lots of love, always, Shiona xxx

glenjenn said...

glad 2 hear ur fist week went ok considering wot adam is going through,wot a brave wee boy. thinking of u all everyday hope 2 see u all soon love glen,jenn and kids xxxx

Amanda said...

Glad to here treatment is going well. Still missing that cheeky grin in the moring, hoping to see it soon thinking of you all take care Amanda (Bennett)xxxxxxx

Unknown said...

Not much I can add to all the other comments Lynn, other than you mention about a blood transfusion (only maybe) hope this is an appropriate time to ask everyone to donate blood if they dont already do so, as you all know first hand how vital it can be.

Thinking of you all.

Irene, Daniel and Mark

Stormy_TX said...

I just joined the group and had no idea about all of this... my prayers and thoughts are with you from Texas...

Cindy