Well that is what we had hoped for anyway. Again sleep seems to be something we are having to lose out on for now, Adam was up and down again almost every hour (worse than a newborn)!!
Anyway, up early again and chemo given, still showing no signs of nausea so that is good. We were all in good form going to hospital, when we arrived he asked if he could show his brothers the treatment room today while we were waiting for the anethetist to arrive. Having been told times were not flexible, we then had to wait 40 minutes for her to arrive,by which time Adam's good mood had gone and he was starting to get upset, fed up and generally peed off. He started crying and moaning. Spike took the other boys out to the car to watch a dvd while Adam and I waited some more. She eventually arrived and Adam was taken through for his "special" sleep and radiotherapy. His waking today was much much better than yesterday, he was still moaning but not the demon child like before.
He has reduced the amount of steroids so we are not sure if it is because of this or because he was exhausted and cried out waiting around before is treatment. Either way it was a much better time for him on our journey home today.
Here's hoping things are about to settle into a pattern now.
Boys back at school tomorrow so granny having to get up early to help out. Will need to sort out the breakfast club at school for them too.
Again, thanks for messages and emails. It's great knowing we are not alone on this journey.
Lynn x
Adam is our youngest son, he has just turned 5. He was recently diagnosed with a pontine glioma (Brain stem tumour), this is inoperable and incurable. This blog is an account of his journey through various treatments, his progress and the happy times we share as a family.
5 comments:
So glad it was alittle calmer for you all today..
shame about the wait and it upsetting Adam after a good start.
Thinking of you and your family
Carolle x
My prayers and warm thoughts going out to you Lynn, Adam and all your family.
Thinking of you,
Debbie aka Trouble
Thinking of you all at this difficult time.
Lots of love,
Jen Ritchie x
Lynn, I will not begin to imagine what you are going through but as a mother of three I have a pretty good idea. I will keep Adam in my thoughts and prayers and your whole family as well. I know that this illness not only effects Adam but everyone as well. Hope your days go better and Adam starts to feel a little better.
Shelli aka his_shelli
Sending you all lots of love. We're here to support you Lynn & Spike so please let us know if we can do anything at all.
Speak soon,
Love Shiona xxx
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